Earlier this year we commissioned an evaluation of our Community Appointment Days.

Laura Finucane, Clinical Director at Sussex MSK Partnership Central shares her reflections on the evaluation.

Why was it important to have this evaluation?  

When we commissioned this evaluation, our main goal was to get an independent and fresh perspective on what we had already observed. We needed an objective review to validate our findings and to dig deeper into the data – helping us to see what might have been overlooked.

Most importantly, we wanted to assess it all through the lens of health inequality, ensuring our work is truly making an impact where it’s needed most.  

The value of independent scrutiny  

One of the key purposes of this evaluation was to keep evolving. We wanted the data not only to validate what we were doing, but to inform and improve future Community Appointment Days (CADs), strengthening the overall offer.

This has been an invaluable process, continually shaping how we support our community. 

What have we learned?

A significant shift we’ve made is moving our health hub to the front of the patient journey. This simple change led to a dramatic increase in screening for blood pressure and diabetes – a real success in terms of uptake. But the evaluation also revealed some gaps, like the fact that many people weren’t engaging with the information provided. So, we’ve now placed extra resources on stewarding, helping guide people right from the front door.  

Data has become a powerful tool for us, highlighting areas that need further attention and helping us plan the next steps. We’re seeing the importance of exploring longitudinal data to understand long-term outcomes. And one key takeaway? Both people attending and staff have really valued the service, with many staff members appreciating the chance to step outside their usual routine and connect more deeply with people and colleagues.  

Importantly, this evaluation has paved the way for new initiatives, particularly in tackling health inequalities. We’re now focusing on reaching those who don’t typically engage with services, ensuring that our approach is as inclusive as possible. 

Applying our findings to future work  

Looking ahead, we’re keen to build on what we’ve learned. Our current model was developed with patients on waiting lists in mind, but our future plans aim to offer CADs as the first touchpoint in a person’s health journey with us. We believe this early intervention will help people understand what to expect and get the support they need sooner.  

We’re also strengthening our collaboration with the voluntary and community sector, ensuring our offer truly reflects the needs of our local population – and we’re using data to guide us every step of the way. 

Laura’s reflections on the project  

This project started with a bold vision in 2022, alongside Natalie Blunt, Managing Director of Sussex MSK Partnership Central.

We took a risk in trying something different, but with the focus on what matters most to people who access the service– staff thought we were a bit mad at first – but gradually, they came on board. Initially, there was a temptation to simply ‘lift and shift’ hospital services to the community, but we knew that wasn’t the right approach.

What we needed was a more radical change, and our staff fully embraced that challenge. 

The CAD continues to evolve, change and works because of the enthusiasm and dedication of the team. This has only been possible because of that commitment and the team effort. 

It was the culture of the organisation that allowed us to take those risks and pushed us to think outside the box. We were supported every step of the way.

For me, one of the biggest takeaways has been the sheer joy of working with our staff in such an engaging and inspiring way.

This journey has been full of learning, growth, and joy, and it’s something we’re all proud of.

You can read the Evaluation Summary or download the full Review and Evaluation document here.

How does our Memory Assessment Service provide personalised care that makes a real difference to people?

In my first week at Here, I was sharing space with the Brighton and Hove Memory Assessment Team. I was privileged to hear one side of a conversation between one of our Memory Support Workers (MSW) and a person who was accessing the service for the first time.  

Can you say a bit about how personalised care is the foundation of the MAS?  

Our Memory Assessment Service purpose is “To help me and my loved one get the care I need, to live my life well”. We designed the service around the understanding that everyone is different with different needs, but they also have strengths and assets. Having a memory assessment can be scary, we wanted to acknowledge this and think about how we provide our support to be built around people with the aim of offering the best experience for them.

How do we apply those principles in practice? What does it practically mean in developing and running the service?  

The main difference with the way we work is that we offer wrap-around support from a named Memory Support Worker (MSW) from the first contact call to assessment and care planning. That first contact call is really important. It’s a chance to build a relationship with someone. Our first contact call template is designed based on What Matters To You (WMTY) principles.

We ask the person about what they’re experiencing, what’s important to them, and who is important to them.  

This lets us offer support based on their strengths and needs, for example, are they struggling with personal care or food, getting out of the house. These things can affect someone’s general health as well as their memory, and support offered at this point can really help people while they’re waiting for their assessment.  

‘What’s important to you’ helps us understand what a priority for them in terms of diagnosis, treatment and support options. And ‘Who is important to you’ helps us to understand their support network and identify if they may be isolated and need extra outreach, or if families and loved ones need support also.  

People get a letter with the details of their named MSW who will be with them throughout, and when they have their appointments with the clinician, the clinician will have access to the records from the MSW and vice versa, so it is seamless for the person. 

If they do have a diagnosis, they then have a Care Planning appointment with their named MSW, who they will have known since the beginning, and the relationship they have built up helps create a really tailored care plan.  

What roles do we have and how are they different? How do we train and support staff in MSW roles?

We developed our Memory Support Worker role to provide the pre and post diagnosis support and to be that named person all the way through.  

When MSWs join us, they have a programme of shadowing across all the other roles in the service, from admin team to clinicians. They experience assessments and diagnosis appointments, and MDT (how the diagnosis is formulated). Then they shadow experienced MSW to learn about the different call types and how the templates guide you through.   They see some of the scenarios that they might experience in their new role.

They learn about communication styles and how would you alter your communication style depending on the person and what they need.  

They then have Guided Practice with an experienced MSW to either help during the call, or to feedback afterwards. This is helped by our technology allowing three-way calls.  All MSWs have monthly 1-1 supervision and monthly group supervision with other MSW.

Group supervision is an opportunity to discuss cases, share learning and support each other, and to think about potential changes that we can make to improve the service.   

Are data and case management systems structured any differently to facilitate the WMTY approach?  

We use SystmOne (S1) and the data and analytics team at Here are experts in design and use of S1 in clinical services and this has allowed us to build and continually evolve our templates in S1. As all staff are S1 users, all the relevant information about people we work with is accessible to everyone in the team.  

Each appointment type has its own template which we’ve created and adapted as we’ve developed as a service. For example, with the First Contact Call template we have added in fields for demographics and reasonable adjustments to make sure we’re thinking about what the person might need, and offering adjustments such as the type of information they need or help getting to appointment, if someone’s religion means they need appointments on certain days, or if they have a preference for the gender of their clinician, and what their interpreting needs are.  

On a service level we use PowerBI for reporting on deliverables and KPIs, but we also do additional analysis and add that to knowledge gathered through patient experience. This can help identify and address gaps, for example, we did some analysis by demographics and identified that the service possibly wasn’t meeting the needs of our LGBTQ+ patients.  

We approached Switchboard Brighton & Hove LGBT Switchboard about collaborating together to understand better the needs of the local LGBTQ+ community. As a result of this learning, we then made changes to the language we used, it influenced our collection of demographic data by placing more importance on this group to help us provide more personalised care and support and in signposting/referring people to the most appropriate services for them. This is a start, and we want to carry on listening and improving our service in this way.

What challenges can it throw up, if any?  

Everyone will be aware of the pressures that health and care, and voluntary sector organisations are under, and this does affect what we’re able to do. We try to be as proactive as possible, but there may not be capacity in the wider system to respond to this.  

In terms of running the service, there is a risk of an emotional toll on staff because of the engagement with individuals that we offer. Helping our team to learn how to manage the impact on themselves of this work is key and I mentioned above the importance we place on 1-1 supervision and group supervision, which is really important for that emotional side of things as well as the professional or practical.

We also encourage informal peer support such as team chats, colleagues giving each other opportunities to debrief after difficult calls, and support from managers to take time to process situations if needed.  In terms of leadership and always seeking to grow our practice, and develop our service, the NHS Sussex Personalised Care Network is a way to connect with others locally who are doing similar work.  

What would be your recommendation for others starting on this journey?  

In terms of developing a service in this way, it’s important to listen to the people using the service and take on board their thoughts and feelings.  

When working with individuals, the key is really active listening and being purposeful about what recommendations or support offered, not offering all the things on the list, but focusing on one step at a time and going at the person’s pace.  

Leadership in your organisation is key too, they have to really get and be committed to personalised care.  

It’s the stories that bring it to life, showing the impact that you can have by working in this way.  

When I worked as an MSW, I visited a person who was very isolated, couldn’t cook for himself, couldn’t get out because of steps up to his front door. We worked closely with Ageing Well service in Brighton & Hove, and they helped him with cooking, shopping, lunch clubs and then ultimately with a move into supported accommodation. He has a mobility scooter now and goes out nearly every day. He’s in a much better place.

Listening to what he wanted and what he was missing out on has had a massive impact on his quality of life and therefore on his condition.  

I think it’s important to remember that people are not just their health condition, and that their wider social situation can have such a huge impact on their health and wellbeing.  

Dementia is progressive, so it’s essential to focus on quality of life.

People can still live well, and it’s so rewarding to be able to help that happen.  

The Sussex Personalised Care Network aims to: 

• Improve workforce knowledge, skills and confidence in personalised care. 

• Connect staff across the Sussex to create opportunities to grow, learn and lead on personalised care together. 

• Share experience, resources and practical solutions to challenges. 

• Demonstrate impact of Personalised Care for people, workforce and system. 

The importance of personalised care

Personalised Care Week, organised each year by the Personalised Care Institute, is always an opportunity to talk about personalised care – what it is and why it matters.

In many ways, it is extraordinary that in modern health services we need to. After all, what could be more personal than health? What other service needs to be so uniquely tailored to your life?

The decline of individualised healthcare

But over the past century, healthcare has been less individualised – as we focus on better science and better efficiencies, healthcare has become less personal, more remote, and much more transactional than ever before.

In the late 20th century, when New Public Management approaches grew, the NHS, like many organisations, sought to make sure they used their skills, capabilities and resources to the best effect for our populations. So far so good, perhaps.

Except key elements of the market approach fall down in healthcare.

Efficiency and productivity vs. personalised care

In the last few years, conversations about health and care have been resolutely focused on the pressures and demands.

We have been more focused on efficiency and productivity than ever before. And it is impossible to conclude anything other than this is not working.

We are better at pathways, better at flow, have better medicines, more skilled clinicians, better hospital sites. But the health of our nation is failing, and in the words of our own health secretary, the NHS feels broken.

At the heart of this we find an issue illuminated by the language of design – we have fallen in love with solutions, rather than the problem.

With 80% of the determinants of health sitting outside of healthcare services, our focus on better tech, quicker care, slicker pathways may be misguided. In fact, we may be increasing demands – both on services and on the people who receive them.

The role of personalised care in treating multi-morbidities

So Personalised Care Week is a good time to remember this, especially as we focus on multi-morbidities. If you are living with two or more long-term health conditions (like 15% of the population), nothing will be more important than someone taking the time to understand what will improve your health, and how treatment can fit your life.

To deeply understand rather than assume what the problem is, by spending time with those affected. These insights lead to very different definitions of what the challenges are, unlocking solutions that will allow us to tailor healthcare for each and every one of us.

Consultant stroke physician, Dr Ingrid Kane, reflects on provisions for stroke survivors, and how the Stroke and Wellbeing Pilot has improved the lives of patients in Sussex.

If we go back to the first Stroke and Wellbeing Service meeting we had together – which was a long, long time ago in a hall in Brighton, it felt like it was a moment of change actually being at that meeting – because you had so many people from the community, from the hospital, everyone was there explaining how they are part of this system.

In all the time I’ve been doing stroke, I’ve never had the opportunity to be in a room with all those different people who were all involved in the Stroke and Wellbeing Service, and for us all to chat and listen to people and listen to patients, and there are so many people doing so many good things – it’s just not all joined up.

I’m involved in the care of stroke patients from when they come in to the front door, right until they leave the hospital and on into outpatients and following them up in clinic. As a workforce, we’re a big team, we’re a busy team, and we’re all trying to do different things and there’s never enough time. We don’t have enough staff to do all the work that we would like to do and that we should do.

The Stroke and Wellbeing Service has really made an impact and it’s something that I would love to see continued because it’s made such a difference to people.

I think by having these other roles, it means that it frees up a bit of our time to be able to maybe concentrate on other things and let those other conversations that need time. let them happen through a single point of contact. I know when I have the time to spend more time with patients and their relatives, they get a lot out of that – one size doesn’t fit all.

It’s so difficult knowing how, for that individual, they can best navigate the system. And you only get to know that by getting to know people a bit better and having the time with them.

And you might try one thing that doesn’t work, then you move on to something else. If you’ve got the time to do that, that’s what makes all the difference.

When we get reports of people saying they feel abandoned when they go home, that’s not unique to Sussex, that’s wherever you happen to have your stroke. So I think the people that have been part of the system, the single point of contact with a stroke support worker is important. It can be used anywhere, it can be transferred to anywhere in the stroke system. And similarly, the health builders I think they are so important within the hospital, but also in the community as well.

The stroke pathway doesn’t stop when people leave here. It continues all into the community and it can continue for many months. And that was one of the things that we talked about when we first met is how do we get that true integration from acute into community and how can we get it to continue. Health builders, you just need more of them and more of those groups, and that could again apply to anywhere in the country and to any types of community groups, any age. All of these roles could be moved into other systems.

GP and clinical lead for the Memory Assessment Service (MAS), Dr Rachel Duncan, speaks about stroke research and the particular challenges stroke survivors experience.

There isn’t really a proactive offer from primary care to stroke survivors. So really, the ball is in the court of the stroke survivor to contact primary care with a particular problem. But we also know that this can be challenging because of capacity issues and difficulties with access. And you’ve also got a group of people who have cognitive, mood and energy problems, often in that time after they’ve had their stroke.

So all those factors make it a challenge for them, possibly to engage a lot with primary care. We know there’s a gap, we feel that we should somehow be doing more, but we don’t really know what that more looks like or how you could even provide that in the current healthcare arena when everybody is so pressured, and services are struggling to meet the needs.

Out of those early discussions out of the case studies and the service mapping and identification of any gaps locally, came the idea of a stroke support worker, and the idea that people who’ve had lived experience have got so much to offer somebody who’s going through this sudden new diagnosis. A solution that isn’t completely clinically focused, but that meets those needs, to me, would make a lot of sense from a health economic point of view.

I’ve seen first-hand what difference it can make to patients coming through the service to have that support element embedded within our clinical team and how personalised and holistic that can be. Having that kind of support service really is of huge benefit to clinicians as well, because it does spare a lot of clinician time.

I think the fact that our local findings and learning really were mirrored by this larger study, the IPCAs study that I mentioned before, I think that’s got to be very powerful to hopefully, in the future, take this forward and have these kind of roles embedded across lots of different chronic illnesses. But I think stroke’s a good place to start.

“By creating a mission around health equity, we can connect our staff to a bolder vision for their work, with healthcare workers as agents of social change, making a difference to our world rather than processing an endless chain of individuals passing through.”

In 1834 Britain passed the Poor Law, an act of Parliament partially creating a safety net for all, but also enshrining a principle of deterring people from making unnecessary demands on public funds that remains present in today’s national debate.  

The infirmaries that grew from the poor house would soon be described as “a disgrace to our civilisation” (Lancet 1865) and served as inspiration for the alternative visions of Beveridge and Bevan a generation on.  

The Marmot review in 2010 and ten years on (2020), along with the desperately disproportionate impact of COVID show how slow our progress has been.

Health inequalities today

In today’s Britain, healthy life expectancy remains widely divided between rich and poor with inequities widening since 2010 English indices of deprivation 2019 – GOV.UK

Nye Bevan’s vision for the NHS was a far-reaching reform of access to healthcare, with a more dramatically socialist root than is widely spoken of.

In providing universal access to healthcare, free at the point of delivery, Bevan viewed the NHS as part of an infrastructure that would dismantle division of class and wealth.

When we talk about health inequalities today, we often think of correcting poorer health outcomes, and less about social justice.

There is a risk that we fail to recognise in real terms the need to deliver more (and different) health and social care interventions for some people, rather than just making sure there is equal access to the traditional offer.

Shifting the language from health inequalities to creating health equity

More insidiously, at times of high demand, services can pivot to the quick wins, trying to reduce overall waits or meet blunt targets. At these times, delivering care to groups with different needs can feel more challenging, ‘complex’, and bypassed on route to the ‘low hanging fruit’.

Wider than this, we know the presence of health conditions or caring responsibilities adds disadvantage over time, a vicious cycle where 54% of carers report their own health had suffered, and 44% had put off seeking health treatment because of their responsibilities. For these groups ‘equal’ access to treatment as usual will not meet their need.  

Shifting the language from health inequalities to creating health equity paints a much broader picture.

It engages our services in recognising that part of the mission of the NHS is a social justice one, that we are a part of how wealth is re-distributed, by providing safe, universal, free access to healthcare, we can balance the accident of birth. As Marmot says, “if health has stopped improving, it is a sign that society has stopped improving”. 

Healthcare workers agents of social change

By creating a mission around health equity, we can connect our staff to a bolder vision for their work, with healthcare workers as agents of social change, making a difference to our world rather than processing an endless chain of individuals passing through.

From this lens, we are stretched to consider what more we can do, taking proactive approaches to the delivery of health, seeking out places and populations who we know are disadvantaged, and playing our part in levelling the playing field.

With this focus, our task is shaped differently. No longer do we look at access data in terms of whether it is representative of our population, but whether it is representative of our population need. 

Our programs and services spend more in areas of deprivation, understand that delivery methods than may be more expensive, and focus on the value this represents in lifting the disproportionate distribution of wealth (in its widest sense).

Doing things differently for a better world

More contentiously it could mean sifting through these long waiting lists differently – to identify those who are disproportionately impacted, less advantaged, less resilient, less able to wait, in service of a fairer society.

It is as much part of our social mission as it is our commissioned services, and we want to do more. We are not alone. Despite all of the pressures within the NHS, we know there is a growing emphasis and commitment to the pursuit of a better world, a drive for health equity at every stage of our lives.  

Through our data dashboards and outreach programs (Vax and CAD), we have learned about how to deliver healthcare differently. Delivering quick, efficient healthcare to the many, and bespoke, targeted offers to the few.

We believe we’re stronger together. If you’d like to work with us to find new and innovative ways of growing health equity then we would love to hear from you.

Get in touch: collab@hereweare.org.uk

We’re really proud of our colleagues and the amazing work they do for our communities and healthcare.  These stories are from the people that work at Here, who work so hard everyday to provide exceptional care, for everyone.

This week we’re spotlighting Enam, our SMSKP Project Coordinator. Enam has been working for Here since March 2022.

Why did you choose to work in MSK?

I was working in the Vax team, and I was approached by a colleague to apply for the role. The role interested me as the work seemed interesting and exciting. Considering the skills I learned from being in the vax team I was intrigued to see if I could rise to the challenge of MSK.

Describe what you do in 100 words.

A project is initially discussed within MSK Leads. Our Manager, Andy Henderson, then meets us to discuss and allocate an agreed project. Projects have the definition of being strategically important to the MSK service such as where we can improve / create a patient service or system and for Here itself such as improving the office space for staff (but these projects are rare).

Once a project is allocated it is up to the project coordinator to drive, implement and deliver the project within its set deadline. We also handle the aftermath of the project, such as reviews and reporting.

What do you enjoy most about your role?

The variety, no two projects are the same. I am a keen learner and always looking to improve my knowledge of MSK and project management. The team around me is great, our project team is actually split on to two with Development and Improvement, working alongside them is great.

Seeing a project completed and being implemented into the service has its sense of pride knowing the team put a lot of effort and time in to it.

What would you say to someone thinking about a career in MSK?

Do not be afraid of not knowing. The organisation is great and provides training and learnings. You can always ask for support. MSK is a huge service. From an admin / operations perspective there are plenty of opportunities to develop.

How would you describe the MSK in one word?

Dynamic

Our Impact Report 2023-2024 is now up on our website, showing the impact we have and showcasing some of the great work we’ve been so proud of this year!

Here’s Impact Report 2023-2024

In our report you’ll find out about:

• How our Health Builders are a vital part of our unique person-centred approach.
• Celebrate 10 incredible years of MSK transformation with us.
• Learn about how our equality dashboards are helping us to find those who are not accessing health services and how we’re using the data they collect to co-create services that are better suited and accessible, for everyone.

We would love you to hear your thoughts and feedback. Please feel free to share with anyone else you might think would like to find out more about us. 

If you’re interested in working with us, or finding out more about our projects, partnerships and opportunities, please do get in touch. We love to connect, share best practice and explore collaborations.

here.innovation@nhs.net

We’re very proud of our colleagues and the work they do for our communities and healthcare.  This is part of an ongoing series of stories from the people that work at Here and all of the different services we deliver.

Today we meet Jamie Tulley who is a Patient Care Advisor (PCA) in the Brighton and Hove Memory Assessment Service. Jamie has been working for Here within MAS just over two years.

Why did you choose to work in the Brighton and Hove Memory Assessment Service (MAS)?

Back in 2014 I worked in a care home looking after residents with Alzheimer’s and dementia, and I wanted to get back into that line of work and for the NHS as well. When this job was advertised I went for it and thankfully got the job.

Tell us more about your role as a Patient Care Advisor (PCA)

We deal with incoming calls, booking in people to arrange of appointments, whether that’s from the start of the service with the first contact call, right through to the assessments and things like that. I do a lot of administration as well, like cross checks, dealing with the day to day organisation as well, making sure it’s running. But I’d say the main thing is being that first port of call in terms of dealing with patients predominantly, and loved ones as well.

What would you say to someone thinking about a career in the Brighton and Hove Memory Assessment Service (MAS)?

I think it’s certainly a great place to work, especially if you’re a kind and compassionate person. I think we give back to our patients and loved ones, especially with it being such a really interesting diagnosis as well compared to others. There’s sort of a taboo around Alzheimer’s and dementia. So I think it’s a very rewarding job and service to work for.

How would you describe MAS in one word?

I think I’ve already said it but I would probably say compassionate. Again, I think it’s not only our patients that we’re caring for, but it’s also for the loved ones as well. So, I think the word compassionate probably stands out more than others.

In Norman’s first blog piece he shared his story ‘From Patient to Partner’, 12 months on he shares the next the chapter about his new role as Lead Health Builder.

Sussex Musculoskeletal Partnership Central’s (SMSKPC) ethos of delivering innovative care is what initially attracted me to volunteering as a Patient Partner in the MSK service in 2015. I wanted others to experience that same life changing personalised care in their own lives.

I spent seven years volunteering in the role, working on service improvements to support people in managing their health needs. Last year I took on a more formal role as Lead Patient Partner.

Soon thereafter and in response to the NHS Long Term Plan, Patient Partners changed our title to Health Builders. We wanted people to see us as more than partners in existing models of care. We wanted to be involved in the drive towards building better health for all and in improvements in care for unwell people.  

We want to support people in their journey to better health. 

As Lead Health Builder, I support the organisation’s strategic development, governance and service improvements. Being in this position and recruiting others with MSK and wider health service experience, helps to ensure people’s lived experience is central to considerations and decisions of the leadership team and that this in turn permeates the culture of the organisation.

Through the work of the wider Health Builder group, we build links with communities, the voluntary sector as well as local and national government to focus on ‘what really matters’ to people. 

The NHS Long Term Plan published last year, with strong implications of putting people at the heart of managing their own healthcare. This significant national policy change has to put people in control of their own health care journey, in partnership with clinical staff, other professionals and health focused charities.  

The plan pledges to develop ‘fully integrated community-based health care’. A bold new order in which there is a greater focus on prevention of disease and promotion of good health, supported by traditional treatment which is both exciting and challenging.  

We recognise the impacts of poor MSK health on general health and wellbeing. 

With MSK disorders affecting up to 20 million people across the UK and accounting for the fourth largest NHS programme budget spend of £5 billion, in England alone, we know that they account for one of the biggest areas of workload of the health service. We also know that 40% of this workload is due to potentially treatable risk factors. Our mission is not simply about workload, but most importantly it’s about providing exceptional care for everyone. And we mean everyone. 

Through innovations in care and operational processes, such as Community Appointment Days, self-referral, self-booking and electronic post-clinic letters to people and their GP’s, SMSKP has been able to deliver services in ways that really matter to people. This has led to greater efficiency and therefore less cost whilst improving care. 

Community Appointment Days (CADs) are events where people referred to the service are met in a community setting, such as a leisure centre or community hall. They are provided with a booklet, or passport, into which they enter all the information they gather during the appointment. We put patient records in the hands of those using our service and we simply scan their document as they leave.   

The CAD starts with a conversation with a clinical person to identify what really matters and advice and care are provided, or they can move on to a more in-depth examination and discussion about their condition. Thereafter a range of community support groups, health charities and local and national government organisations are on hand to provide advice and direction. A CAD really is a one stop shop. 

Impacts of MSK pain and disability have significant negative effects on the quality of life of millions of people in the UK; 10.8 million working days are lost because of musculoskeletal conditions and they are associated with many comorbidities, including diabetes, depression, and obesity. MSK conditions are reported to affect 1 in 4 of the adult population in the UK and they account for over 20% of all presentations in primary care. 

My days are spent in building networks with people, communities and both local and national organisations to work collaboratively to bring about change in the way health services are delivered. Being involved in decision making at the highest level within the organisation, as a service user, I am uniquely placed to have person to person conversations with those who are changing the way the system operates.

Being in a room together is key to how things can improve. It enables real meaningful conversation, person-to-person, human, conversations that get acted on. That is why I do this work – because I know being a Health Builder makes a difference. But I can’t do this alone. We need more people to be involved in this exciting and potentially life changing work for our Sussex communities.  The new Major Conditions Strategy recognises MSK conditions along-side high blood pressure, cancer and other serious diseases. We want to ensure good MSK care works for our communities and that it is fit for the future. We are not alone. The NHS is changing, and we are at the forefront of this change. 

We have shown the impact that personalised care has on people and the system. The transformative experience this has on those receiving and delivering care when the conversation shifts from ‘what’s the matter with you’ to ‘what matters to you’.

If you’d like to join us on this journey, please do get in touch: norman.webster1@nhs.net