Long term conditions Archives - Here https://hereweare.org.uk/blog/category/long-term-conditions/ Rated Outstanding by the CQC Mon, 15 Jul 2024 13:15:51 +0000 en-GB hourly 1 https://wordpress.org/?v=6.5.2 https://hereweare.org.uk/app/uploads/2024/03/cropped-Here_favicon-32x32.png Long term conditions Archives - Here https://hereweare.org.uk/blog/category/long-term-conditions/ 32 32 Sussex MSK Partnership Central members attend IFOMPT 2024 world conference https://hereweare.org.uk/blog/sussex-msk-partnership-ifompt/ https://hereweare.org.uk/blog/sussex-msk-partnership-ifompt/#respond Fri, 05 Jul 2024 13:58:33 +0000 https://hereweare.org.uk/?p=13999 The post Sussex MSK Partnership Central members attend IFOMPT 2024 world conference appeared first on Here.

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Sussex MSK Partnership Central members attend IFOMPT 2024 world conference

Jamie Tulley

Laura Finucane, our Clinical Director at Sussex MSK Partnership Central, is also President of The International Federation of Orthopaedic Manipulative Therapists (IFOMPT).

This year the International Federation of Orthopaedic Manipulative Physical Therapists (IFOMPT) – the world conference of musculoskeletal and manual physical therapy, celebrates its 50th year as a global leader in Orthopaedic Manual Physical Therapy (OMPT) excellence. The event welcomes experts from all over the world to its conference in Switzerland to explore:

  1. Innovative models of care in musculoskeletal and manual physical therapy
  2. Physical therapy futures – emerging areas
  3. Expertise in musculoskeletal and manual physical therapy

“Sharing ideas and initiatives among colleagues and experts is crucial for developing excellence and helps pave the way for reducing musculoskeletal disorders globally – and enables people to bring new ideas into their local services.

 

This is my fourth and final year as president, and the 50th anniversary of IFOMPT, and I am excited about the discussion and debates and learning about the initiatives taking place around the world and turning those ideas into practice.” ~ Laura Finucane president of IFOMPT and Clinical Director for Sussex MSK Partnership.

Laura has been involved with IFOMPT for the last 18 years, serving on the executive committee for the last 12 years and president from 2020-2024.

Also attending from Sussex MSK Partnership Central are Andrew Kemp and Stephanie Hemmings.

Andrew is an Advanced Practitioner and Stephanie is a research and Audit Lead, Senior MSK Physiotherapist and Lecturer in Physiotherapy at University of Brighton.

They will be presenting a poster titled “Equity factors in trials of physiotherapy for meniscus tear: A systematic review”​  and Stephanie will also be presenting on our nationally celebrated Community Appointment Days (CADs).

Photograph: Jenny Handy

The International Federation of Orthopaedic Manipulative Physical Therapists Incorporated represents groups of Manipulative and Manual Physical Therapists around the world who have completed stringent post-registration/post-graduation specialisation programmes in the field of neuro-musculoskeletal disorders.

Also of interest

CAD success in Brighton

CAD success in Brighton

Last Monday, colleagues from Sussex MSK Partnership Central supported University Hospital Sussex to see 240 people at their own Community Appointment Day (CAD). Held at the Sports Centre at University Of Sussex in Falmer, the CAD supported people from Brighton through...

read more

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CAD success in Brighton https://hereweare.org.uk/blog/cad-success/ https://hereweare.org.uk/blog/cad-success/#respond Thu, 04 Jul 2024 15:25:26 +0000 https://hereweare.org.uk/?p=13965 The post CAD success in Brighton appeared first on Here.

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CAD success in Brighton

A group of about 30 people stood in a sports hall all facing the camera and smiling

Last Monday, colleagues from Sussex MSK Partnership Central supported University Hospital Sussex to see 240 people at their own Community Appointment Day (CAD).

Held at the Sports Centre at University Of Sussex in Falmer, the CAD supported people from Brighton through strengths- based What Matters to You conversations, and tailored advice, guidance, and rehabilitation depending on their individual needs.

Community providers were also on hand to offer additional support and to connect people on a wider basis with their health and wellbeing. Including SCFT Living Well Programme, Freedom Leisure, Aging Well, MIND, Together Co Social Prescribing, Brighton and Hove City Council and Sussex Integrated Care Board.

The feedback from those who attended was hugely positive and it was great to support people in the community.

“It was so wonderful to be listened to. Everyone was so kind. Please thank everyone as I now understand more about my condition and can be proactive in my recovery.” – Feedback from attendee

Look out for further CAD updates over the coming months.

A group of about 30 people stood in a sports hall all facing the camera and smiling

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Elspeth’s story of her Alzheimer’s diagnosis https://hereweare.org.uk/blog/elspeths-story-of-alzheimers/ https://hereweare.org.uk/blog/elspeths-story-of-alzheimers/#respond Fri, 03 May 2024 09:35:14 +0000 https://hereweare.org.uk/?p=11210 We meet Patient Care Advisor Jamie Tulley.

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Elspeth’s story of her Alzheimer’s diagnosis

Jamie Tulley

The Brighton and Hove Memory Assessment Service (MAS) supports people before, during and after diagnosis.

 

At the beginning of 2020 we spoke to Elspeth, one of our service users, about the events that led to her Alzheimer’s diagnosis and she explains in her own words how much joy she now gets from life.

“You see, I’m okay at talking but I can’t do things. I can’t write, I can’t spell anymore.”

 

“I started to have disasters, in my in my flat, I was just turning on the bath water and leaving it, and I used to flood the floor. I had terrible disasters with my cooking – I nearly burnt the building down – and it was absolutely terrifying. And I thought this isn’t normal loss of memory. This is quite serious loss of memory. So I just sort of realized then that I think I probably might have Alzheimer’s.

“When I said, ‘I’m forgetting things, all sorts of little things’, they would say, ‘don’t be silly, we all do that’. They dismissed it.

Elspeth: Am I right to tell you all this?
Here: Yes, please do!

“Well I said, ‘I’m sorry, but I’m going to the doctors and I’m going to say I’m forgetting everything’.

“And (the doctor) said, ‘would you like to go and have a little test?’ It’s like a little, ‘what does this remind you of, and will you draw something’ – and I didn’t do terribly well. Then she said, ‘we could offer you a scan’ and I said, ‘yes, please give me a scan’ – because I have to know.

“What was my reaction to getting the news? It was almost relief, because there’s a reason for my behavior. I never once had a fit about it and thought ‘Oh, my God’. I thought, well, it is what it is.”

What was life like before your diagnosis?

 

“The children were doing their own thing and I had retired; I was an auxiliary nurse at the children’s hospital. I had to retire when I was 60 in those days. And I thought, ‘oh my God, what am I gonna do now?’ So I just ended up browsing around Brighton’s shops, going home, having lunch, looking at TV in the evening. Nothing really exciting at all.

“I didn’t mind living alone, I was quite smug about it really! I can do whatever I like. If I want to watch something on TV, there’s nobody to argue with! And I was making the most of it, really.”

 

Support through the Memory Assessment Service

 

“Then I discovered this (her diagnosis and the Memory Assessment Service support) – It’s been such a nice surprise.

I’ve never been happier. Isn’t it ridiculous?

“I’m having such a lovely time. I’m going to all the lovely groups, I am singing, cookery – and then we all sit down and eat what we’ve cooked. And we went to this beautiful walled garden, an old hundred year old walled garden with apple and pear trees. We sat out on the lawn and we planted seedlings and put them in the green house, and we picked some lavender and then they showed us how to make lavender bags, then we had afternoon tea on the lawn – all run by wonderful volunteer ladies.

“How could everybody be so kind and loving to us all? They say ‘we love you all, thank you for coming’. It was unbelievable, it was like going to heaven.

You wouldn’t believe how kind people are. And I’m really, really grateful for that because we feel that people walk by and they’re busy, but they’re not all like that, are they?

“I think she’s called Louisa – she’s seen me right through from the start. She’s given me all the information and she’s been to all the meetings.”

Everything seems so lovely to me now

“I’m really, really happy. It’s one of the nicest times of my life with all the struggle and stuff I’ve had. I’m not a sort of miserable person.

“I’m more aware of nature. I just bought a pound bunch of daffodils and they’ve all opened out in my lounge, and I can’t think of anything more beautiful to see in the morning when you wake up, the simple things.

“I said to Penelope the other day, ‘this must just be like when you’ve taken LSD!’ And she said, ‘My God, I hope you don’t really know what that’s like!’ She nearly collapsed when I said that!

“Everything seems so lovely to me now. Everything is there, but you have to know how to join the club first. Some will just go off and say, ‘no, I don’t want to do that’ or ‘I don’t want to go’. And that’s such a shame if I don’t try it, isn’t it?”

What has made the difference to you?

“Just me appreciating life. Because I’m not going to have it much longer anyway at my age, and I just want to cherish every day.”

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What if we made community powered health, for everyone https://hereweare.org.uk/blog/community-powered-health-for-everyone/ https://hereweare.org.uk/blog/community-powered-health-for-everyone/#respond Thu, 28 Mar 2024 13:38:18 +0000 https://hereweare.org.uk/?p=8465 [TEST] Working Here: Jamie’s story - We meet Patient Care Advisor Jamie Tulley.

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What if we made community powered health, for everyone

Jamie Tulley

As a social enterprise our purpose is to create exceptional care, for everyone. We are incredibly proud of the services we deliver, and sharing our learning is an important part of our culture.

Many businesses talk about growth, for us, we measure that in terms of impact, as well as delivery.

That’s why we were so excited about our New Local webinar this morning, talking about our Community Appointment Day innovations in Sussex.

Today over 270 people were on the call, with the wonderful Natalie Blunt and Laura Finucane talking about how they got the CAD up and running, and what impact it had.

Whilst we are still tracking our data, and learning what works, what I’m left with this morning is the incredible news that across the country, CADs are popping up like mushrooms.

What started as a ‘what if’ conversation in our teams, is becoming an accepted idea – fuelled by a desire to experiment, to try something different, knowing that doing what we’ve always done will not solve the problems we face.

Its not just in MSK, and its not about waiting lists. Creating new ways to deliver truly personalised care is an idea our systems are ready for. Common sense innovation, that anyone can read about and think – how might we do that around here?

As a social enterprise, this is what we are about. Business for good. We’re excited to connect with others who are exploring this idea. We’re happy to share, and importantly we’ll learn from how this idea develops in other places.

Creating exceptional care for everyone is going to take change on a new scale. Strength based, community powered health.

Whether you’re daunted, deliberating or determined to try, we’d love to be connected.

Want to learn more about the Community Appointment Day model?

For more information please contact us: collab@hereweare.org.uk

Read about how it all started in our blog: Community Appointment Days – An idea that rapidly turned into an innovation

Dr Helen Curr, Chief Executive

My role is to hold ourselves true to our values. To make sure our commitment to putting people at the heart of their healthcare journey is embedded in every decision and action we take.

Also of interest

CAD success in Brighton

CAD success in Brighton

Last Monday, colleagues from Sussex MSK Partnership Central supported University Hospital Sussex to see 240 people at their own Community Appointment Day (CAD). Held at the Sports Centre at University Of Sussex in Falmer, the CAD supported people from Brighton through...

read more

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Creating long term health: Four key ingredients for a different approach https://hereweare.org.uk/blog/long-term-health-four-key-ingredients/ https://hereweare.org.uk/blog/long-term-health-four-key-ingredients/#respond Wed, 06 Mar 2024 15:03:05 +0000 https://hereweare.org.uk/?p=9978 [TEST] Working Here: Jamie’s story - We meet Patient Care Advisor Jamie Tulley.

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Creating long term health: Four key ingredients for a different approach

Jamie Tulley

Medical approaches to health commonly diverge around acute and chronic presentations. What I need after an unexpected accident, a short illness or a new concern is very different from when I am living with a condition long term.

In an acute illness, rapid, transactional models of care are effective – even welcome – lives are at stake, care is short term, and expertise largely sits with the trained professional.  

Translating this mode into chronic care is filled with risk. A chronic condition affects our whole lives, from morning to night, throughout the seasons. Any treatment approach cannot be simply prescribed from professional to patient, and compliance monitored. We need to flip the lens – any treatment regime needs to ‘comply’ with our lives – what is important to us and what can be sustainably incorporated into our unique set of circumstances.

The perfect treatment approach for one, can be radically flawed for another. Humans do not come in neatly packed boxes.

Photograph: Jenny Handy

This challenge of what makes the right health collaboration is what makes us tick at Here. We are inspired and driven by the right combination of skills that builds health – the collaboration between expertsbyexperience and health professionals, that has peak potential in working with long term conditions.  

Now more than ever before, this is where we focus our time.  So what sits at the heart of this approach?  

It breaks into 4 key pillars:

1: What Matters To You

This is at the heart. Conversations, not consultations. We start every contact with every patient focused on knowing what matters most – an honest and safe space to match their personal experience, hopes, aspirations and obstacles, with the knowledge and skills a professional might provide. It sounds simple, and it many ways it is. It takes a commitment to putting your needs as a clinician, an administrator, a busy health professional second place, making sure value to the patient is the offer on the table.

2: True collaboration

Every individual conversation is a collaboration. Shared decisions with people seeking care are made and ways forward devised. Then we learn, we change, the service and our partnerships evolve. The people who use our services become part of our infrastructure – with paid roles bringing deep expertise. 

This isn’t ‘representation’, we invest time and resource in people who have the skills we need – we co-design, improving the services we provide because we have access to a secret weapon – the inside track of what it is like to receive them. We do this, not just because it is the right thing to do, but because it is the smart thing – our services are better – for the people who use them, the people working in them, and the communities they serve. 

Photograph: Jenny Handy

3: Our data

We believed our approach would be better. Now, we know that it is with real time data, available to all, that tracks outcomes. It tells us what works, and what our populations need. It lets us manage our resources well, particularly in services under pressure. Our data enable us to create equity by design. All our services generate and report data on who uses them, and who doesn’t, driving us to take action to reach the people who may need us most, and who are least often served well. Smart data system drives real change in the world.

4: Our approach is sustainable

A temporary pilot, that leaves no lasting legacy of change waste opportunity, effort and resource. We know our world is changing, and that’s why we have a continuous approach to innovation and improvement. We have to take the best of the innovations and bake them in to our service design. Complex repetitive tasks are prone to human error, we use the best technology to free precious time for clinicians and care staff to invest in human and unhurried connections.

We are committed to connecting to people all over the world who are innovators in health. We learn wherever we can, and where evidence is not available, we set out to experiment and find solutions ourselves.

We share what we find, taking pride when others adopt approaches we have road–tested. Working with partners, we can step in, and out of delivery. We work alongside anchor institutions and community groups who may be taking this work forward long after our role is complete.

If it sounds right, intuitive, that might be because it speaks to what you would want to build a healthy life. Driving these principles through what we do every day, is what keeps us here, working in health, every day.

It inspires us to better things, and it’s the beating heart of exceptional care, for everyone.

Also of interest

CAD success in Brighton

CAD success in Brighton

Last Monday, colleagues from Sussex MSK Partnership Central supported University Hospital Sussex to see 240 people at their own Community Appointment Day (CAD). Held at the Sports Centre at University Of Sussex in Falmer, the CAD supported people from Brighton through...

read more

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Community Appointment Days – An idea that rapidly turned into an innovation https://hereweare.org.uk/blog/cads-idea-to-innovation/ https://hereweare.org.uk/blog/cads-idea-to-innovation/#respond Thu, 14 Sep 2023 18:02:28 +0000 https://hereweare.org.uk/?p=10079 Community Appointment Days (CADs) provide a comprehensive range of MSK services under one roof. Conveniently located in local leisure centres, CADs offer a range of resources tailored to the specific needs of the local population, providing same-day access to services including assessments, advice, health promotion, rehabilitation and community and voluntary sector support, all in a non-medicalised environment.

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Community Appointment Days – An idea that rapidly turned into an innovation

Jamie Tulley

In April and May, across two days, 550 people from our physiotherapy routine waiting list came and joined us in their local community at our Community Appointment Days. 

Community Appointment Days (CADs) provide a comprehensive range of MSK services under one roof. Conveniently located in local leisure centres, CADs offer a range of resources tailored to the specific needs of the local population, providing same-day access to services including assessments, advice, health promotion, rehabilitation and community and voluntary sector support, all in a non-medicalised environment.    

Found the new service really useful. What could have taken a few months was made possible in 1.5 hours.

Taking the opportunity to step out of business as usual to look at how we might shape the future MSK service, we knew that the premise for doing so was multifactorial. We recognised that the current system tended to lean into treating people with a single condition, putting people on a pathway that focussed on a biomedical model, and where it was perceived people are best managed in a hospital setting. We also acknowledged that clinicians were being faced with increasing complexity and intensity of clinical practice, and consequently, staff were feeling burnt out with low morale.  

Photograph: Jenny Handy

MSK practitioners at a Community Appointment Day (CAD)

Inspired by New Local’s Community Powered NHS and Victor Montori’s ‘Why We Revolt’, the CAD innovation leans into the strength of the community to find the solution to support individuals, shifting away from a paternalistic mindset to a therapeutic alliance which recognises the expertise individuals bring is equal to the expertise that clinicians bring.

So good to be able to talk to someone who understands your problem, everyone was so helpful. This day is a really good idea.

The aim of the CADs was to create the right conditions to allow clinicians to support people with their MSK condition and beyond, lean into the local community services, really embed personalised care, focus on prevention and health promotion, and try to reach people who really need us.

Listen to the interview here

Read what makes the CADs tick in Chief Executive, Dr Helen Curr’s blog

In the short video below Laura Finucane explains the idea behind the Community Appointment Day and how it worked.

Find out what people had to say after attending a Community Appointment Day here.

Download the Community Appointment Day Essential Ingredients.

Download the Community Appointment Day Information Sheet.

About Sussex MSK Partnership Central

Sussex MSK Partnership Central is a joint venture between Here, & Sussex Community NHS Foundation Trust. This is a prime contracting model supporting musculoskeletal (MSK) health for a population of 650,000 covering physiotherapy, orthopaedics, rheumatology and chronic pain. The service operates across central Sussex; including Brighton & Hove, Horsham and mid Sussex and Crawley.

Website: www.sussexmskpartnershipcentral.co.uk

Interested in finding out more about the Community Appointment Days?

Email collab@hereweare.org.uk or use the form below.

Get in touch

Interested in learning more about our services, programmes and innovations?   Fill out the form and we'll get in touch.

Also of interest

CAD success in Brighton

CAD success in Brighton

Last Monday, colleagues from Sussex MSK Partnership Central supported University Hospital Sussex to see 240 people at their own Community Appointment Day (CAD). Held at the Sports Centre at University Of Sussex in Falmer, the CAD supported people from Brighton through...

read more

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